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Thursday, 9 February 2012

Being encouraged to enjoy myself & share this with others

Wow it has been a long time!

I won't go into what's being going on as it will make a very long read lol!

This post is actually for a specific reason. Its about encouraging CFS/ME sufferers.....mainly myself!... to get out, socialise, have a little fun & not be scared to share this with others.

I know all too well this is not an easy task. Believe me I know. If I've not got headache, I'm stuck in bed. If I'm not stuck in bed I'm wrapped up on the sofa feeling like I have been run over by a bus. However I have found if I apply a little time for myself doing something I enjoy or find fun I often find my symptoms are less & my recovery time from said activity is a lot quicker.

I have not found this out by chance. A friend of mine introduced me to Reverse Therapy. I'm not going to go into details about it I'll leave that up to you but I will say this "Reverse Therapy is NOT about mind over matter." (as many people including some professionals believe the key to CFS/ME recovery is.)
I will also say it has NOT cured me....(yet!!) ..... but I have found it very beneficial.
http://www.reverse-therapy.com/

If you have read my other posts you will know about my visits from the benefits office....twice in one year!!
That situation is really the key to this post.
I believe it was a "friend" who rang on both counts. I also believe this "friend" was just so ill informed of CFS/ME they didn't understand that wearing jeans, driving a car, walking the dog & going to Salsa, the first time round & crafting the second time round we're actually not benefit fraud!!!
On both visits the benefits people we're very friendly & said they encourage hobbies & some activities as these are a crucial part of the healing process with CFS/ME.

Even though nothing came of the visits as I was doing nothing wrong I have felt imprisoned, scared to leave the house, feeling like I am being watched & unable to do anything I might enjoy. I've been scared to share times of enjoyment with friends & family for fear of a "friend" mis-understanding this & making another phone call.

I have learnt from Reverse Therapy that addressing things like my fears above help alleviate symptoms. So I'm hoping this post & later a post on Facebook will help put aside some of my fear & educate my friends & family so there won't be a repeat situation! I want to be able to share with my friends & family the things I am doing not have to watch every word I say or type.

A friend of mine made a phone call to ME North East & ESA Benefits recently, who both encourage activities, social events, fun & enjoyment to aid CFS/ME recovery. It is because of this encouragement I am doing this post & intend on doing some things this year I have not tried before, things I enjoy & find fun, also I intend to share these happy times with my friends & family.
I truly believe if I don't try to start living a little how I want & without fear I have no hope of ever having any type of recovery.

Here's to having the courage from the encouragement of others to live a life of joy, fulfilment & without fear.

Helen Laurence