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Friday, 27 May 2011

Come & join the Monk E !!!!!!!!



CFS Monk E is an organisation dedicated to campaigning for and helping CFS / ME sufferers in North Yorkshire

I am part of CFS Monk E. I designed & illustrated Monk E. Please join us on 


&

Wednesday, 11 May 2011

Short post from me today.....

.....well its ME awareness day tomorrow & today it is all to real for me...not having a good day :0(

After doing a bit too much yesterday to do with our article going in the Press I have crashed. Was in bed by 7:45 last night. Feel ruddy awful today. Got out of bed this morning for the loo, got to the door (at the end of my bed) had a really bad head rush & then my legs paralysed.....never happened before it was freaky. Hubby had to get out of bed to support me so I could try move!......also not good when you're busting for a pee LOL !!!

Lets hope some rest today sorts me out.....also I'm stopping the tablets again because I've decided the side effects out way the good they do....back to the docs for alternatives!!

Hope you all are feeling as well as possible xx

Monday, 9 May 2011

CFS/ME awarness week Please help me raise awareness ~ Post #2


As I have just recently joined twitter & have tweeted to JLC to ask to help raise awareness I thought I'd re share with you the pic of my knitted JLC with the real one!!!

CFS/ME is a devastating & debilitating invisible illness.
I have been suffering now for ....oh many years, too many to count!

There are 250,000 people in the UK alone with CFS/ME 
It causes among other symptoms:
chronic fatigue
muscle, joint & nerve pain
concentration problems ~ brain fog
disturbed sleep & sleep patterns

Due to government 'cut backs' CFS/ME services all over Britain are being stopped.

Help us campaign for York by following CFS / ME York on Face book & twitter
or
simply add the badge below to your blog for at least this week.
You can link it to Action For ME 
My ME blog
or our Face book page



It CFS/ME awareness week!

Hello folks :0) 
Yep it is that time of year again!! 

CFS/ME/FM awareness week


CFS/ME/FM awareness DAY 12th May

On Saturday I did a Craft open day to help raise funds & awareness. Wasn't a very good turnout but i still managed to raise £32.00 so not a bad day :0)

I am at this moment not feeling all there (brain fog!) but thought I would make an effort to at least post something.

I am back on amitriptyline & I think they are starting to give me the weirdo side effects. I can not decided which is worse the symptoms WITH the tablets or the symptoms WITHOUT!!!
Ok I really can't think now so thats it from me today!

Tuesday, 3 May 2011

Sunday, 13 March 2011

I'm back again!!!!

Hi, no you're not imagining it I am here again!

Had a rubbish weekend health wise. Spent all of Saturday with a migraine & most of this afternoon too. On  the plus side my throat seems to be better so hopefully this dip I have been having is finally coming to an end??!!

I'm feeling a bit down tonight. Had one of those hubby doesn't understand moments earlier & I got a bit upset.
Ok...ok so I have a bit of a belly at the moment, but as I said to him I would love to do some exercise & keep fit but I can't. If I did some exercise I would then need to allow time to recover & rest from doing it as I learnt in the group last year. If I do that then I won't be able to do something else .g make tea.
I want to be able to do everything but as I have just proved to myself over the last few weeks. Trying to do everything lands me in bed & really ill for 3 weeks & counting!!!

I really need to get back to what we did in the group last year scoring myself, resting, relaxation time, structured days & pacing. I know it works but it is sooo hard to keep at it.

On the scoring system 0 being REALLY bad & 10 being really good I have been a 3 this morning & a 1-2 this afternoon which equals not a great day & fluctuating between 3 numbers in one day.

Note to self -GET STRICT & GET YOURSELF BETTER!!!

Friday, 11 March 2011

its been a while!!

Hi there! Yep I am still here & yes it has been a while!! Too long in fact.

Thank you to all the lovely people who have read my blog & emailed me. I apologise that I do not keep in touch very well, but it is always great to hear from you all & I try to reply & keep in touch as best as I can.

I am struggling at the moment with my energy levels & my throat is coming up & down depending how tired I am. Over the past 3 weeks I have spent a great deal of time stuck in  bed or on the sofa.

Everything seemed to come to a head after my last appointment at Leeds. We went for a follow up appointment after our first go at IVF which failed :-(
I needed to release the emotions by cleaning etc & did far too much, followed by more too much etc & now I am paying the price for the energy & the emotional energy the IVF took plus the energy & I have stupidly spent trying to ignore I have ME.....yes I I'm afraid I have fallen back into the 'I don't have ME, if I just do this I'll be fine!!' ....next day stuck in bed feeling as awful as possible!!

Sleep has been a problem too but is getting better again. Trying not to go back onto the tablets but now & then I have a couple just so I get at least one nights sleep!!

Ok well I've rambled enough for tonight so I'll go see how my ebay is doing & then try going to bed.
Night night x