Skip to main content

Lets Blog,......dooby , dooby ,,,,lets blog!!

Actually it should be lets get warm. I am totally frozen this morning, feel rubbish & on my period (which was a week late again)

Today I am going to give you 10 symptoms I have other than "feeling tired" which is the only one anyone ever knows!
  1. Severe pains in my neck which can cause me to pass out, just from holding my arms up at shoulder height.
  2. Bruises & not always small ones ALL over my legs. I look like I've been beaten up!
  3. Pains - in my elbows, knees, ankles, down my legs, fingers, wrists, back - all very randomly or if I stay in same position too long or walk too far etc... & we're not talking discomfort I'm talking PAINS!
  4. Loss of voice &/or sore throat
  5. Brain - foggy head, lack of concentration. Total memory erased moments. Can't even form a sentence or think what my name is....& I'm not joking...it is VERY scary.
  6. Not being able to move when I want to eg - when you think move your leg you dont actually have to think "move my leg" your brain automatically sends the signal. I have to actually think - move legs now please, please move now, oh come on this is just getting stupid, MOVE! - again can be quite scary, it feels like my muscles are just wasting away.
  7. Really bad muscle twitches - my legs fly off in all sorts of directions when they feel like it!!
  8. Depression -feeling  pissed off at being ill, the pains, the disturbed sleep, the nightmares, feeling of being alone, no one really understanding, feeling like it would be easier on everyone if you weren't here anymore, generally feeling so fed up I could quite happily jump under a bus - if  I could manage to walk to somewhere with a bus & manage to jump that is!! 
  9. Feeling cold even when everyone else is in a T-shirt - I have a vest, long sleeved top & a cardy or jumper over the top & will feel just right.
  10. FEAR - you may wonder how fear can be a symptom? Well due to all the other symptoms Fear of many things is a huge symptom for me & now more than ever. Fear of depending on happy pills & pain pills etc, Fear of going out - making plans & then not being able to do them. Fear of being ill like Jan 09 with the pharyngitis - ending up bed ridden for months, in a wheel chair or hospitalised. You may think that sounds stupid but it could very easily happen & does to many people.
 There are so many other random & small symptoms , the list is pretty much endless, but all the small things added together along with the main CFS/ME symptoms are what make CFS/ME so debilitating. You have no quality of life & when you do have a few good minutes, hours or days you treasure them.

Please take a minute to imagine how your day would go if you had all these symptoms. Even the silly little things like brushing my teeth can make me pass out when my neck is bad or be so tiring to do I need to go back to bed. That's if I've managed to put toothpaste on the brush & not soap!!

CFS/ME awareness week - Please be aware!!

Comments

Joanne said…
Hi Helen
Your symptoms sound so like mine a few years back. I can't remember if you ever checked out with a Lyme specialist and I don't mean infectious diseases they are in denial.

The Breakspear hospital Hemel Hempstead do see lots of patients with ME and many turn out to be Lyme although it can be expensive initially if you have a good doctor they will often follow the advice and prescribe on the NHS.

Sorry I expect I've said this all before, so many of us lymies were diagnosed with ME/CFS first, you probably have already seen the link into my Lyme Blog.

Hugs Joanne
I'm sitting here thinking - this is scary, and it wasn't me that wrote it. It mirrors a lot of my days as well.
Gentle Hugs
Helen xx

Popular posts from this blog

Forever Living ~ Aloe Vera

Hi. It's been a very long time since I posted on any of my blogs. Apologies!Since having my wonderful son I just haven't really had time for anything. My crafting and drawing is on permanent hold and I spend my time looking after him and managing my ME.However! ....as my benefits are coming to an end in June and I really want to try something for myself I have decided to become a forever living distributor.
I have been attending interviews at the job centre as I am now down as "fit for work" but there's no way I can go back to employment i'm not that "fit" and I want to spend time with my son. To be fair the job centre have been very patient and helpful and doing this will not effect my benefits whilst I'm still receiving them.Why forever you ask? Well I have used their products for a long time now and as it's very flexible it will fit perfectly around my ME and being a mum.I'm not officially a distributor yet but by the end of this comi…

Crafting is my Therapy. What's Yours?

I suffer with chronic fatigue syndrome, anxiety and depression. Together they can make me a very fatigued, emotional, angry, withdrawn person. I over do things because keeping busy takes me away from the anxiety and depression, but the truth is all I am doing is running straight into the arms of my fatigue monster when I do it! This picture is something I thought of the other day to explain this feeling. 
I try to meditate and I am starting to do small amounts of stretching and yoga, but the one thing that helps keep relaxed and sane, and has done for many years now is my crafting. I love all kinds of crafts. My latest makes are my CE tested Sensory Monsters "The Peepos" they are great to touch and cuddle when you're feeling blue. 
I have also found my online friends in the crafting communities and chronic fatigue groups very helpful and comforting. Stops you feeling so isolated. 
Something that brings me happiness is helping others which I hope to do with my sensory to…

Research brings me to GAPS

After much time away from alot of things I've had time to think and reflect. I've done a vast amount of reading and research due to my own problems with the M.E and candida and my sons food allergies/intolerances. My research brought me to the book Gut and Psychology by Dr Natasha Campbell-Mcbride It was a very interesting read on top of other research I had previously done I was sure reading it that the only way forward was for me to at least give GAPS diet a go. So tomorrow I shall start day 1 and I have decided to record my journey with it on here. Please excuse my lack of sense in this post. It's late, I'm tired but felt I needed to get this out so I had made a start!Bring on tomorrow 😁